Childhood Cancer A Parent Guide to Solid Tumor Cancers 1st Edition by Anne Spurgeon, Nancy Keene ISBN 1941089933 9781941089934

Childhood Cancer A Parent’s Guide to Solid Tumor Cancers 1st Edition by Anne Spurgeon, Nancy Keene – Ebook PDF Instant Download/Delivery: 1941089933, 9781941089934
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Product details:

ISBN 10: 1941089933 
ISBN 13: 9781941089934
Author: Anne Spurgeon, Nancy Keene

Each year more than 6,000 children and teens in the United States are diagnosed with a solid tumor (e.g., kidney tumor, liver tumor, neuroblastoma, retinoblastoma, or sarcoma). The illnesses and their treatments can have devastating effects on family, friends, schoolmates, and the larger community. This newly updated edition contains essential information families need during this difficult time. It includes descriptions of the newest treatments, such as computer-assisted surgery, tandem stem cell transplants, and targeted therapies as well as practical advice about how to cope with diagnosis, medical procedures, hospitalization, school, and finances. Woven throughout the text are true stories–practical, poignant, moving, funny–from more than 100 children with cancer, their siblings, and their parents.

Childhood Cancer A Parent’s Guide to Solid Tumor Cancers 1st Table of contents:

1. Diagnosis

Signs and symptoms

Where should your child receive treatment?

Physical responses

Emotional responses

The immediate future

2. Bone Sarcomas

The skeletal system

Osteosarcoma

Ewing sarcoma family of tumors

Information on standard treatments

3. Liver Cancers

The liver

Signs and symptoms

Diagnosis

Hepatoblastoma

Hepatocellular carcinoma

Undifferentiated embryonal sarcoma

Choriocarcinoma of the liver

Liver transplantation

Information on standard treatments

4. Neuroblastoma

The sympathetic nervous system

The adrenal glands

Who gets neuroblastoma?

Signs and symptoms

Diagnosis

Staging

Prognosis

Treatment

Information on standard treatments

Newer treatment approaches

5. Retinoblastoma

The eye

Who gets retinoblastoma?

Signs and symptoms

Diagnosis and staging

Prognosis

Treatment

Information on standard treatments

6. Soft Tissue Sarcomas

Muscles and connective tissues

Signs and symptoms

Diagnosis of soft tissue sarcomas

Rhabdomyosarcoma

Non-rhabdomyosarcoma soft tissue sarcomas

Information on standard treatments

7. Kidney Tumors

The kidneys

Signs and symptoms of kidney tumors

Wilms tumor

Other types of childhood kidney cancers

Information on standard treatments

8. Telling Your Child and Others

Telling your child

Telling the siblings….

Notifying the family

Notifying friends and neighbors

Notifying your child’s school

9. Choosing a Treatment

Treatment basics

Standard treatment

The protocol

Clinical trials

Making a decision

The entire clinical trial document

Removing your child from a clinical trial

Protocol changes

10. Coping with Procedures

Planning for procedures

Pain management

Procedures

11. Forming a Partnership with the Medical Team

Choosing a hospital

The tumor board

Finding an oncologist

Types of relationships

Communication

Getting a second opinion

Conflict resolution

Changing doctors

12. Hospitalization

The room

The floor

Food

Parking

The endless waiting

Working with the staff

Staying with your child

Preventing mistakes

Playing

13. Venous Catheters

External catheter

Subcutaneous port

Peripherally inserted central catheter

Cost

Choosing not to use a catheter

Making a decision

Adhesives

14. Surgery

Pediatric surgeons

Types of surgery

Presurgical evaluation

Anesthesia

The surgery

Discharge

Rehabilitation

15. Chemotherapy

How chemotherapy drugs work

How chemotherapy drugs are given

Dosages

Different responses to medications

Questions to ask the doctor

Guidelines for calling the doctor

Chemotherapy drug list

Chemotherapy drugs and their possible side effects

Prophylactic antibiotics

Colony-stimulating factors

Antinausea drugs used during chemotherapy

Drugs used to relieve pain

Topical anesthetics to prevent pain

Complementary treatments

Alternative treatments

16. Common Side Effects of Treatment

Bed wetting

Changes in taste and smell

Constipation

Dental problems

Diarrhea

Fatigue and weakness

Hair loss

Learning disabilities

Low blood cell counts

Mouth and throat sores

Nausea and vomiting

Rehabilitation needs

Serious illnesses

Skin and nail problems

Can pets transmit diseases?

17. Radiation Therapy

Children who need radiation therapy

Types of radiation therapy

Questions to ask about radiation treatment

Where should your child go for radiation treatment?

Radiation oncologist

Radiation therapist

Immobilization devices

Sedation

What to expect during a radiation treatment

Possible short-term side effects

Possible long-term side effects

18. Stem Cell Transplantation

What is a peripheral blood stem cell transplant?

When are transplants necessary?

Choosing a transplant center

Stem cell harvest and storage

The transplant

Emotional responses

Paying for the transplant

Complications after transplant

Long-term side effects

19. Siblings

Emotional responses of the siblings

Sibling experiences

Helping siblings cope

Positive outcomes for the siblings

20. Family and Friends

Restructuring family life

The extended family

Friends

21. Communication and Behavior

Communication

Common behavioral changes in children

Common behavioral changes in parents

Improving communication and discipline

22. School

Keeping the school informed

Keeping the teacher and classmates involved

Keeping up with schoolwork

Helping siblings

Returning to school

Avoiding communicable diseases

After treatment

Federal laws

Section 504 of the Rehabilitation Act of 1973

Individuals with Disabilities Education Act

Individual healthcare plan (IHCP)

Your legal rights (Canada)

The terminally ill child and school

23. Sources of Support

Hospital social workers

Support groups for parents

Online support

Support groups for children with cancer

Support groups for siblings

Parent-to-parent programs

Hospital resource rooms

Clergy and religious community

Individual and family counseling

Camps

24. Nutrition

How treatment affects eating

What kids should eat

Making eating fun and nutritious

Vitamin supplements

What kids really eat

Dietitian/nutritionist

Parent advice

Commercial nutritional supplements

Feeding by tube and IV

25. Medical and Financial Record-keeping

Keeping medical records

Keeping financial records

Coping with insurance

Sources of financial assistance

26. End of Treatment and Beyond

Emotions

Last treatment

Catheter removal

Ceremonies

What is normal?

Initial follow-up care

Long-term follow-up care

Treatment summaries

Employment

Health insurance

27. Recurrence

Signs and symptoms

Emotional responses

Goal setting and treatment planning

Making a decision about treatment

28. Death and Bereavement

Transitioning from active treatment

Supportive care

Dying in the hospital

Dying at home

Involving siblings

The funeral

The role of family and friends

Sibling grief

Parental grief

A. Blood Tests and What They Mean

Values for healthy children

Values for children on chemotherapy

Common blood tests

Your child’s pattern

B. Resource Organizations

Solid tumor organizations (United States)

Solid tumor organizations (Canada)

Solid tumor organizations (Australia)

Solid tumor organization (Germany)

Other service organizations (United States)

Other service organizations (Canada)

Other service organizations (Australia)

Camps

Educational and legal support

Financial help

Free air services (United States)

Free air service (Canada)

Free air service (Australia)

Insurance

Medications (low-cost or free)

Sports organizations

Stem cell transplantation

Wish fulfillment organizations (United States)

Wish fulfillment organizations (Canada)

Wish fulfillment organizations (Australia)

Hospice and bereavement (United States)

Hospice and bereavement (Canada)

Hospice and bereavement (Australia)

C. Books, Websites, and Support Groups

How to find the information you need

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